On February 18, 2020, I went under the knife for a TTC ankle fusion. Little did I know, my recovery and the world would turn upside down. This is the conclusion of my story.
Tag: charcot marie tooth
Why I’ve Been Gone and When I’m Coming Back
Oh, hey there. It's been a while. I took a bit of a break from releasing any new pieces. I've been working on a few here and there, but the last full piece I wrote was an expansive and anxiety-riddled trip that drained me of that creative spark. It was almost like my origin story, and… Continue reading Why I’ve Been Gone and When I’m Coming Back
What a Long, Strange Trip it Was: My Life as the Only Disabled Kid in School
*Some names in this memoir have been changed to protect privacy. Morrison Mock was an elementary school split in two. One half was a standard K-5th grade school, while the other half served students with severe physical and mental disabilities. The administration made sure that the two halves were inclusive, that the standard K-5 side… Continue reading What a Long, Strange Trip it Was: My Life as the Only Disabled Kid in School
I’m 28 Years Old and Just Bought Shorts for the First Time
A few weekends ago, my husband convinced me to go with him to a Pokèmon Go community day event (yes, some of us are still playing). We roamed our old college campus in a never-ending quest to catch 'em all on an Indiana day so hot and sticky it was like living in the Devil's… Continue reading I’m 28 Years Old and Just Bought Shorts for the First Time
After Years of Battle, A Monster Unveiled
My phone buzzed on my desk at 5:30 on Friday evening. I didn't recognize the number and bet my coworkers that it was one of the many spam calls we all get on a daily basis. I fought my natural instinct and picked up. It was my neurologist. The results of my genetic test were… Continue reading After Years of Battle, A Monster Unveiled
The Year I Walked Away from My Wheelchair
Part 1 I've gone through innumerable pairs of leg braces in my life. Every year or two, throughout my childhood and adolescence, I had an appointment with an orthotist who would wrap my legs in cellophane and plaster, creating perfect replicas of my atrophied legs. It was like getting a fresh pair of shoes for… Continue reading The Year I Walked Away from My Wheelchair
My Right Foot: A Quick Update
Yesterday was quite a day! My guest blog for LUS Brands went live, and the response was overwhelming and wonderful. It also had the added benefit of distracting me and calming my nerves before my afternoon surgical consult. I've needed surgery to correct my right foot for years now, and as part of my personal… Continue reading My Right Foot: A Quick Update
Dealing with My Diagnosis: 25 Years Later
I was just a toddler when my family knew for sure that the disease that had been raging through our bloodline for generations had come for me. There was no formal diagnosis, no genetic tests or EMGs. My legs and feet looked just like my sister's, and my dad's and my dad's dad's. There was… Continue reading Dealing with My Diagnosis: 25 Years Later