On February 18, 2020, I went under the knife for a TTC ankle fusion. Little did I know, my recovery and the world would turn upside down. This is the conclusion of my story.
Oh, hey there. It's been a while. I took a bit of a break from releasing any new pieces. I've been working on a few here and there, but the last full piece I wrote was an expansive and anxiety-riddled trip that drained me of that creative spark. It was almost like my origin story, and… Continue reading Why I’ve Been Gone and When I’m Coming Back
A few weekends ago, my husband convinced me to go with him to a Pokèmon Go community day event (yes, some of us are still playing). We roamed our old college campus in a never-ending quest to catch 'em all on an Indiana day so hot and sticky it was like living in the Devil's… Continue reading I’m 28 Years Old and Just Bought Shorts for the First Time
Part 1 I've gone through innumerable pairs of leg braces in my life. Every year or two, throughout my childhood and adolescence, I had an appointment with an orthotist who would wrap my legs in cellophane and plaster, creating perfect replicas of my atrophied legs. It was like getting a fresh pair of shoes for… Continue reading The Year I Walked Away from My Wheelchair
I was just a toddler when my family knew for sure that the disease that had been raging through our bloodline for generations had come for me. There was no formal diagnosis, no genetic tests or EMGs. My legs and feet looked just like my sister's, and my dad's and my dad's dad's. There was… Continue reading Dealing with My Diagnosis: 25 Years Later